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The ethical and legal regulation of human tissue and biobank research in Europe

dc.contributor.editorBeier, Katharina
dc.contributor.editorSchnorrer, Silvia
dc.contributor.editorHoppe, Nils
dc.contributor.editorLenk, Christian
dc.date.accessioned2011-04-29T14:16:47Z
dc.date.available2014-04-29T14:16:47Z
dc.date.issued2011
dc.identifier.urihttps://doi.org/10.17875/gup2011-386
dc.descriptionHardcover, 170 S.: 32,00 €
dc.format.extent170
dc.format.mediumPrint
dc.language.isoeng
dc.rights.urihttp://creativecommons.org/licenses/by-nd/3.0/de
dc.subject.ddc610
dc.subject.otherOAPEN
dc.titleThe ethical and legal regulation of human tissue and biobank research in Europe
dc.title.alternativeProceedings of the Tiss.EU Project
dc.typeconference
dc.price.print32,00
dc.identifier.urnurn:nbn:de:gbv:7-isbn-978-3-86395-031-6-7
dc.identifier.ppn680151036
dc.relation.ppn680147829
dc.description.printHardcover, 17x24
dc.notes.intern"In order to achieve its goal, the Tiss.EU project organized nine international workshops and three International Status Conferences during its three year project period...The present volume collects the revised reports on these events. ...the documents, in their original form, can also be found at the projectś website, www.tissue.org."
dc.notes.internAußerdem enth.: Ninth International Workshop of the Tiss.EU Project ; 9 (Vilnius) : 2010.09.09-10; Final International Status Conference of the Tiss.EU Project ; (Göttingen) : 2011.01.19-21
dc.subject.divisionpeerReviewed
dc.relation.isbn-13978-3-86395-031-6
dc.identifier.articlenumber8101014
dc.identifier.internisbn-978-3-86395-031-6
dc.identifier.internisbn-978-3-86395-031-6
dc.subject.bisacMED000000
dc.notes.oaiprint
dc.subject.vlb690
dc.subject.bicM
dc.subject.bicJFMG
dc.subject.bicMBDC
dc.description.abstractengHuman tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results.
dc.subject.engTissue Engeneering
dc.subject.engBiobank Research
dc.subject.engLegal Issues
dc.identifier.oapen407336
dc.notes.vlb-printlieferbar
dc.intern.doi10.17875/gup2011-386
dc.identifier.purlhttp://resolver.sub.uni-goettingen.de/purl?isbn-978-3-86395-031-6
dc.identifier.asin3863950313
dc.subject.themaM
dc.subject.themaJBFV5
dc.subject.themaMBDC


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